Friedreich's Ataxia - Mandy's Mission

Amanda Burris & her sister
As it appeared in The Clinton Daily Democrat on 5.2.08
Mandy Burris, 21, of Osceola, Mo., suffers from Friedreich’s Ataxia (FA), a genetic, progressive disease that causes loss of coordination and balance. In some cases, it can cause heart and speech problems. Mandy doesn’t have a sense of balance and leans on someone or something to get around, and she often feels fatigued.
There is currently no cure for FA. Stem cell research is the most promising development in reversing damage and regenerating lost capabilities, according to the Friedreich’s Ataxia Research Alliance. Mandy takes vitamins rich in selenium, but this doesn’t make her feel 100 percent. She has good days and bad days. The good news is that Mandy doesn’t suffer from many of the disease’s symptoms. FA, however, is a slow progressing disease, and more severe symptoms can strike many years after diagnosis.
Mandy plans to travel to China to receive stem cell treatment. A British woman became the first person to ever receive stem cell treatment for FA in 2005 (BBC article here). Stem cells from the umbilical cords of babies were injected into her blood. Although few media outlets followed the treatment, she did report improvements, including feeling more energetic.
Treatments cost roughly $50,000, and Mandy plans to travel to China in the spring of 2008. To donate, stop by any Hawthorn Bank in Missouri, or send a check under “Mandy’s Mission” to Hawthorn Bank — Downtown Banking Center; 102 N. 2nd St.;Clinton, MO 64735.
–Trevor Davis
For future events, click here Event Calendar .
We’re brainstorming fundraiser ideas. If you have any ideas, let us know: mandysmission@gmail.com.
Clinton Daily Democrat - January 31, 2008 Edition
Clinton Daily Democrat - December 13, 2007 Edition

Learn more about this toy drive and find a drop-off location in your area. Many toys deposited in local bins are for younger children, so you can also donate online to help purchase gifts for children between 8 and 14 years old.

Stanley Glover has been diagnosed with Alpha 1 - Antitrypsin Deficiency and is in need of a double lung transplant. Because of this rare lung disease, he is on oxygen most of the day and has only 20% of his lung capacity left. Once a week he has to give himself an IV drip to reduce the deterioration of his lungs.
He has written a book with the hopes the proceeds will sustain him and his 14 year-old granddaughter while undergoing the surgery and rehabilitation process. The surgery will be done at Shands Hospital in Gainesville, FL if you would like to verify this. All proceeds from his book sales will go toward his expenses, as he has to relocate there to stay for three months following the surgery so the hospital can monitor him during the first stages of healing.

EASTER SEALS
Author Danielle Hiner is the mother of a child with cerebral palsy. Her book, "Growing With Joe" is her autobiography and she has set up a fund through her local Easter Seals program. A portion of the proceeds from her sales of "Growing With Joe" will go into that fund and be donated to a family who cannot afford treatments for their own child. I highly commend Danielle for her unselfish generosity. I hope her story touches you, as it did me. Details on this book can be found by visiting Danielle at her website, linked above to her name, or by visiting my "non-fiction" books page.
ORGAN DONATION
I can't imagine how a mother would feel to have her child, her precious gift from God, taken from her so suddenly and then...have enough courage to donate her organs, in order to save the life of another child. I was so moved by her story, so touched by her profound love of her daughter, that I was at a complete loss for words. Please take the time to visit my friend's website and sign her guestbook! It will definitely put life into a different perspective for you! Count your blessings!
www.geocities.com-michellemaries


Michelle's mother, Cindy Jo Greever, contributed her own stories to these two books, available from Author House. Details on these two books can be found on my "non-fiction" books page.


I am also an animal rescue advocate, so please, adopt a pet from your local animal shelter. Be a responsible pet owner! Spay or neuter your pets. You can also help your local shelters by donating food for the animals or money for the spay/neuter programs available. You can go to www.petfinder.com and click on your local animal shelter for a full update on the animals they have available to adopt. Save a life! Adopt a pet today!
Another of my favorites is ASPCA, America's Society for the Prevention of Cruelty to Animals.
Don't forget about The American Cancer Society, the American Diabetes Association and the Locks of Love Foundation.

Cindy donated 21 inches of hair to the Locks of Love Foundation in June 2005. This was her second time in donating to the organization.
And if you can, please donate to your local food pantry, who assists families in need by supplying them with food and clothing. You may need them someday or, if you have gone to them for assistance before, now is the time for you to give back!


Grace Children's Orphanage is feeding and taking care of 50 Orphan Children in the amalapuram town of East Godavari District in the Andhra Pradesh State of South India. We are giving them food, shelter, clothes, medicines, secular an spiritual education along with the study material. We take care of children who are abandoned. Children of all ages are found in our orphanage. These children have no parents and no one wants to take responsibility of them. Some of these children are left here because their parents do not want them as they cannot afford to look after them. We send them to our schools and educate them and help them to live a better independent life as they grow up. All these children are brought up with Christian principles and are taught the word of God. The many children in India begging their food in roads, bus and railway stations. Please pray to see if God can use you to help.
www.freewebs.com/graceorphanage/ http://www.shoutlife.com/graceorphanage Emmanuel@rock.com

Requesting assistance for 32 giant print Bibles.
Yours in Christ Service, Evangelist Stanley Inikorigbe, Ojomiko Community Church, 198 Imadokpe Street , Benin City, Edo State, Nigeria
